By Nancy Edwards
Like many sisters, Alex and Cailin Touseull enjoy spending time together after a day of classes at HSEHS. They go to movies and dance parties, shop, and hang out with their friends.
The only difference between them is that Alex happens to have a disability.
20 years ago, after having had a normal pregnancy, the Touseulls’ mother, Angela, discovered that she had given birth to a baby girl with Down syndrome. Although the diagnosis was a surprise, the family quickly learned that children with Down syndrome vs. those who do not have more similarities than differences.
“Alex does what anyone else can without a disability,” Calilin, 17, said. “I can relate to her, and she can relate to me. She’s very mature for her age.”
Mari Kennedy and her family of Fishers also have a child, Ryan, 12, with Down syndrome. Their daily routines are much like any other suburban clan.
“We take my son to swimming and music lessons and all the other after-school life just as we did my daughter,” Mari said. “Ryan has his chores.”
Angela and Mari are active with Down Syndrome Indiana and are also preparing for the upcoming 42nd annual National Down Syndrome Congress Convention, to be held in Indianapolis for the first time this year.
Founded in 1973, the National Down Syndrome Congress is the country’s oldest national organization for people with Down syndrome, their families and the professionals who work with them. The NDSC offers free information about Down syndrome issues for all ages, in addition to matters of public policy relating to disability rights.
The public awareness campaign for NDSC is, “We’re More Alike than Different.” The NDSC is committed to creating a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.
The three-day convention, held July 11-13 at the JW Marriott in downtown Indianapolis, is dubbed “the world’s largest family reunion,” according to the website, http://convention.ndsccenter.org/, and offers a wide range of workshops to choose from and activities for children, in addition to a group outing to an Indians game and a dance for youth and adults.
Additionally, volunteers are needed to accompany teens and adults with Down syndrome as they attend panel presentations, breakout workshops and participate in a talent show. Other volunteer opportunities include registration, session hosts, floaters and venue guides. Bilingual (Spanish-speaking) volunteers are also needed in a variety of roles.
Angela Touseull said many past volunteers discover that they got more out of the experience than what they put in.
“It’s very fulfilling for anyone that can spend time down there,” she said.
To register for the event, go to http://convention.ndsccenter.org/.
For volunteer opportunities contact Alyssa Ludlow, DSI Volunteer Coordinator, at [email protected].
